Home page two column with video

My life with Goldenhar Syndrome

Elena's jaw just wasn’t like anyone else’s. It was disconnected on one side and was extremely tiny! She couldn't breathe, eat or speak. The Passey-Muir trach valve she refers to as “Paps-Muir” was created by David Muir, a quadriplegic inventor with Muscular Dystrophy. It gave Elena new life and began communication.